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South Suffolk MP raises plight of young Clare girl with epilepsy in call for further research into medicinal cannabis


By Priya Kingsley-Adam


Clare, Suffolk. A series of fundraisers are being held in Clare to raise money for local girl Indie-Rose Clarry, who has Dravet Syndrome, a rare genetic condition which causes epileptic seizures. Her parents, Tannine and Anthony, are hoping to take her to Holland, where she can be treated with cannabis oil, which has been found to be an effective treatment for epilepsy also pictured young Greyson...Picture by Mark Westley. (8562981)
Clare, Suffolk. A series of fundraisers are being held in Clare to raise money for local girl Indie-Rose Clarry, who has Dravet Syndrome, a rare genetic condition which causes epileptic seizures. Her parents, Tannine and Anthony, are hoping to take her to Holland, where she can be treated with cannabis oil, which has been found to be an effective treatment for epilepsy also pictured young Greyson...Picture by Mark Westley. (8562981)

The MP for South Suffolk has raised concerns over the lack of research into medicinal cannabis, after meeting the doctor of a little girl with severe epilepsy.

Indie-Rose Clarry, four, suffers from Dravet syndrome – a genetic condition that causes debilitating seizures and other symptoms.

Her parents Tannine Montgomery and Anthony Clarry, of Maxim Lane, Clare, have called for reform over the application process for medicinal cannabis.

In the House of Commons, James Cartlidge highlighted the need for further research into the medication, after meeting Indie’s consultant.

“He made the point that there is a barrier to prescribing cannibinoids that include THC, because there is insufficient evidence in that case,” said Mr Cartlidge, who pointed out that Indie’s parents have been forced to travel to the Netherlands to purchase the drug.

“That is not because they are criminals, but because they love her. They want to ease her pain and they are desperate,” said Mr Cartlidge.

Health Secretary Matt Hancock has confirmed that additional research will be conducted.



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