A keen golfer is hoping to raise funds for a charity after being left heartbroken by the story of Daisy Brooks who died from a DIPG brain tumour last year.
Daisy, 7, died on November 17, after being diagnosed with the tumour in May that year.
Daisy’s parents Louis and Anna took Daisy to meet Professor Steven Gill, based in Bristol, who had been researching innovative methods for treating neurological disorders like DIPG for over ten years.
In July last year Daisy and her family travelled to Bristol where she underwent pioneering brain surgery.
Aided by a software guided robot, the team installed a series of catheters attached to a titanium device made on a 3D printer which could be used to deliver chemotherapy direct to the tumour.
In Daisy’s name, the family from Bures continues to raise funds for the research led by Professor Gill, hoping the pioneering research that Daisy was part of will one day help find a cure.
To help the family in its fundraising ambitions, Mark Ruane, whose wife went to school with Daisy’s father Louis, decided to hold a golf fundraising event.
“As a father of three, their story has moved me to tears,” said Mr Ruane. “No family should ever have to endure what they have over the past 14 months, but Louis and Anna have managed to create an amazing legacy in memory of their beautiful little girl.
“We want to do what we can to raise some money.”
Combining fundraising with his hobby, 37-year-old plumber Mark, has organised the event for Friday, October 23, at Stoke by Nayland Golf Club.
He is calling on players of any age or ability to come along.
Already 80 people have signed up, and with limited space Mr Ruane has asked for those interested to contact him before Saturday.
He is also looking for individuals or businesses to sponsor a hole, as well as donate prizes for a raffle and auction on the day.
So far £205,000 has been raised on Daisy’s JustGiving page.
Anybody wanting to donate to the charity can visit www.justgiving.com/teams/fundraisingpagefordaisy.
Mr Ruane, from Egremont Street, Glemsford, said: “Any money raised will be more than the charity had that morning.”
To take part in the event or sponsor please contact Mr Ruane on 07917 193459 or email firstname.lastname@example.org.