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‘This disease robs sufferers of their independence’

MORE RESEARCH NEEDED: Christine Binfield with her husband and carer Pat.

MORE RESEARCH NEEDED: Christine Binfield with her husband and carer Pat.

The daughter of a Long Melford woman battling motor neurone disease is striving to improve vital research into the illness.

Christine Binfield, who lives with her husband Pat in St Catherine’s Road, was diagnosed with the debilitating condition, which often leaves sufferers unable to walk, talk or feed themselves, in November 2012.

Sixteen months on and with the 69-year-old’s condition steadily deteriorating, her daughter Rachel Collins is preparing to hold a fundraiser to boost research and make more people aware of the disease.

“Little is known about the disease, there is limited treatment and no cure,” said Mrs Collins, from Broom Street in Great Cornard.

“More research is required and funds are needed to do that.”

Mrs Collins has linked up with the family of Chris Olley, who lost his fight against the illness in December 2012, and AFC Sudbury Supporters Club.

On Saturday, a dinner in aid of the Motor Neurone Disease Association will be held at AFC’s Mel Group Stadium, with 129 guests.

“With this disease, you cannot do anything to help, you just have to be there for them and that is what makes us want to do this,” said Mrs Collins.

“Hopefully, with further research, improved treatments can be identified and eventually a cure found.

“It is a horrible disease that robs its sufferers of their independence.”

It is hoped the event will raise in excess of £2,500 and the funds will be presented to the charity at a forthcoming AFC Sudbury home game.

Chris’ sister, Jenny Olley, said: “Anything that puts the word out about MND is worthwhile.”

 

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